Psychological factors and the uptake of preventative measures in BRCA1/2 pathogenic variant carriers: results of a prospective cohort study

Table 1 Overview on questionnaires used and data gathered at different measurement time points

	Time Point	Questionnaires	Specification
T0	Prior to genetic test result disclosure	▪ HADS	▪ Anxiety and depression
T1	6–8 weeks after test result disclosure	▪ HADS ▪ FPI-R ▪ FMBS ▪ DCS ▪ Intention on RRM/IBS ▪ Sociodemographic data ▪ Family history ▪ Clinical data/cancer history ▪ Risk perception	▪ Anxiety and depression ▪ Personality ▪ Coping styles ▪ Decisional conflict
T2	6–8 months after test result disclosure	▪ HADS ▪ Actual uptake of RRM/IBS	▪ Anxiety and depression

Abbreviations: T Measurement time points, HADS Hospital Anxiety and Depression Scale, RRM Risk reducing mastectomy, IBS Intensified breast surveillance, DCS Decisional Conflict scale, FMBS Frankfurt Monitoring and Blunting Scale, FPI-R Freiburg Personality Inventory

ISSN: 1897-4287