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Table 2 Barriers to using the risk assessment tool and suggested solutions

From: Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews

Barrier type

Suggested Solution(s)

Example Quote(s)

Access to family history

• Add “I don’t know” options

• Move limited family history module to beginning and use it to drive skip logic

“I think that if you were to do that, like have that question at the start and then have that sort of be a gate for having the questions about say your father’s family history, that might have been helpful.” (Incompletion, Interviewee 20)

Acquisition of family history

• Add notification to acquire family history in advance

“About the disclaimer again. Just say this involves questions about your medical history. If you want to, before answering, maybe talk with a relative or … If you have any questions, have someone close by you can ask.” (Incompletion; Interviewee 3)

Health literacy

•Add more literacy aids

“Just having like a little diagram of a woman’s body or, you know, a body with female organs and you have the uterus, ovaries and show like this is where the cervix is.” (Accuracy; Interviewee 52)

Language availability

• Make Spanish option more obvious; add option to toggle between English/Spanish

“Yeah [a toggle option would help]. Probably in the same questions with a little Spanish writing instead of going… taking full Spanish or full English–-have them both in the same website. And you can read in English if you prefer a language, or Spanish in the background.” (Time/Accuracy; Interviewee 38)

Interruptions or time barriers, length or detail of the tool

• Add clear notification about time required to complete and to find a quiet, uninterrupted place

“Maybe prepare me for, say the questions may be somewhat complex and you need to be…uninterrupted so you can focus and fully understand to provide accurate…You know, more proper answers.” (Accuracy; Interviewee 47)

Basic application functions

• Adding save and return function, back button, progress bar, overt symbols for hyperlinks, and automated reminders to return

“I think just to be able to go back instead of restarting….And so if I could just go back to the questions that needed to be changed, that would have been a little bit more helpful.“ (Incompletion; Interviewee 7)