Skip to main content

Table 1 Interviewee characteristics

From: Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews

Characteristica

N (%)

Sex assigned at birth

 Male

7 (13)

 Female

47 (87)

Gender Identity

 Male

7 (13)

 Female

42 (78)

 No response

5 (9)

Race or ethnicity

 Non-Hispanic White

16 (30)

 Black/African American

5 (9)

 Asian

5 (9)

 Hispanic/Latino

15 (28)

 AI/NA/AN

2 (4)

 Middle Eastern/North African/Mediterranean

2 (4)

 Native Hawaiian/Pacific Islander

1 (2)

 Multi-racial/-ethnic

4 (7)

 No response

4 (7)

Education

 Some high school

1 (2)

 High school/equivalent

1 (2)

 Some post high school

3 (6)

 Associate/equivalentb

12 (22)

 Bachelors

16 (30)

 Masters

12 (22)

 Doctorate/professional

5 (9)

 No response

4 (7)

Annual household income

 Less than $20,000

1 (2)

 $20–39,999

8 (15)

 $40–59,999

7 (13)

 $60–79,999

12 (22)

 $80–99,999

7 (13)

 $100–139,999

10 (19)

 $140,000 + 

5 (9)

 No response

4 (7)

Insurance type

 Private, employer

39 (72)

 Private, purchased

5 (9)

 Government, Medicaid

5 (9)

 Uninsured

1 (2)

 No response

4 (7)

Recruitment site

 Kaiser Permanente Northwest

49 (91)

 Denver Health

5 (9)

Cohort

 Incompletion

20 (37)

 Time

13 (24)

 Accuracy

14 (26)

 Time + Accuracy

7 (13)

Mean age (range)

38.1 (23–50)

  1. a Source: Study tracking system data based on participant input (sex assigned at birth, age), study surveys or interviews (all other demographics), and/or analytic comparisons of scores derived from participant input on the study tool (study tracking system database) to genetic counselor risk scores record in a separate database
  2. b Associate (2-year) college degree, or completed occupational, technical, or vocational program and received degree or certificate