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Table 3 Patient adherence data for recommendations related to LS in 74 LS patients

From: Recommended care and care adherence following a diagnosis of Lynch syndrome: a mixed-methods study

Recommended Screening Procedure

Patients Eligible for Screeninga N

Patients Ever Receiving Recommendation

N (% of total)b

Patients Observedc

N (% of recommended)

Patient Adherence

N (% of observed)

Average Observed Intervals (per patient)

M ± SD

Average Adherence (patient)

% ± SD

Total Intervals

N

Intervals Met

N (%)

0% adherence

> 0- < 50%

adherence

50- < 100% adherence

100%

adherence

Colonoscopy

(total cohort)

74

71 (97)

65 (92)

6 (9)

2 (3)

12 (18)

45 (69)

2.5 ± 2.0

81.5 ± 32.7

159

127 (80)

 Colon

 Cancer

37

36 (97)

31 (86)

3 (10)

0 (0)

6 (19)

22 (71)

2.9 ± 2.5

83.2 ± 31.9

91

78 (86)

 No Colon

 Cancer

37

35 (95)

34 (97)

3 (9)

2 (6)

6 (18)

23 (68)

2.0 ± 1.4

80.0 ± 33.8

68

49 (72)

Genetic Counseling

74

54 (73)

46 (85)

1 (2)

10 (22)

10 (22)

25 (54)

3.2 ± 3.0

73.5 ± 32.5

146

71 (49)

Endoscopy

74

51 (69)

33 (65)

6 (18)

1 (3)

7 (21)

19 (58)

1.9 ± 1.3

70.3 ± 39.5

63

41 (65)

Urinalysis

74

48 (65)

48 (100)

8 (17)

8 (17)

17 (35)

15 (31)

3.6 ± 2.0

57.7 ± 36.3

173

90 (52)

Abdominal Ultrasound

74

9 (12)

9 (100)

2 (22)

1 (11)

4 (44)

2 (22)

6.2 ± 3.8

49.4 ± 38.3

56

25 (45)

TVUS

31

12 (39)

11 (92)

6 (55)

3 (27)

1 (9)

1 (9)

4.0 ± 3.0

19.9 ± 31.3

48

10 (21)

CA-125

31

12 (39)

11 (92)

1 (9)

0 (0)

6 (55)

4 (36)

3.5 ± 2.7

72.6 ± 31.4

42

31 (74)

Endometrial Biopsy

29

9 (31)

9 (100)

1 (11)

5 (56)

3 (33)

0 (0)

6.6 ± 3.4

36.8 ± 29.8

59

21 (36)

Pelvic Ultrasoundd

29

NA (NA)

8 (NA)

0 (0)

5 (63)

2 (25)

1 (13)

7 ± 3.3

41.2 ± 34.5

56

20 (36)

  1. Abbreviations: TVUS, transvaginal ultrasound
  2. aDiscrete recommendations are annually, every 1–2 years, every 2–3 years, or every 3–5 years. Recommendations abstracted as “other options” were not included in adherence analysis
  3. bTotal patients with the relevant organ, except for colonoscopy, which was compared to all patients regardless of colectomy status
  4. cPatients counted as observed if at least one interval was met, or at least one complete interval was observed to completion but not met. Patients with other interval options were also not included, due to the necessity to compare patients to a discrete interval
  5. dPatients who received pelvic ultrasound were the same patients recommended to receive biopsy, but recommendations regarding pelvic ultrasound were not recorded. These patients were compared to their endometrial biopsy recommendation
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Hereditary Cancer in Clinical Practice

ISSN: 1897-4287