Table 2 Stages of Change, Probands (N = 16)
Pt ID, Gender | Current Age | Informed of Increased Risk? | Informed FDRs? | Stage of Change |
|---|---|---|---|---|
PB#13, Female | 48 | Yes | No | PRECONTEMPLATION − Has not informed only living FDR (mother), does not intend to − Anticipates negative reaction |
PB#5, Male | 62 | Yes | No | PRECONTEMPLATION − Estranged from family, does not intend to disclose to any FDRs |
PB#7, Male | 62 | No | No | PRECONTEMPLATION − Would not consider discussing increased risk with brother however, brother is aware of cancer diagnosis − Believes brother already undergoing routine colonoscopy due to age (> 50) CONTEMPLATION − Would consider disclosing to children after being informed of risk BUT perceives their younger age as barrier |
PB#4, Female | 48 | Yes | One | ACTION − Informed mother only about increased risk PRECONTEMPLATION − Does not plan to disclose to any other FDRs or revisit conversation with mother − Cultural and informational barriers to family communication |
PB#6, Male | 56 | Yes | Most | MAINTENANCE − Has disclosed to most siblings, children and willing to revisit conversation PRECONTEMPLATION − Has not disclosed to brother living outside of Canada, does not intend to (believes other family members have informed him) |
PB#24, Male | 61 | No | No | CONTEMPLATION − Not advised by HCPs to disclose to FDRs − Would consider telling them after learning this information |
PB#3, Male | 54 | Yes | Some | MAINTENANCE − Has told male relatives and continues to remind them to get screened PREPARATION − Was not aware females underwent colonoscopy − Intends to inform female relatives after learning they are eligible for screening |
PB#10, Female | 36 | Yes | Yes | ACTION − FDRs already aware of risk due to family history but has informed them since diagnosis |
RF#1, Female Lynch | 56 | Yes | Yes | ACTION − “One-time conversation” with family members |
PB#15, Female | 46 | Yes | Yes | ACTION − No children or siblings BUT has informed cousins, parents − Has not revisited conversation (family members avoid talking about it) |
PB#17, Female | 63 | Unsure | Yes | ACTION − Has told siblings, mother (living relatives) |
PB#23, Male | 57 | Yes | Yes | MAINTENANCE − Has informed siblings, parents − “Kept on them” about colonoscopy post-disclosure |
RF#2, Female Lynch | 39 | Yes | Yes | MAINTENANCE − Has told all FDRs − Continues to follow-up about screening |
RM#1, Male | 59 | Yes | Yes | MAINTENANCE − Has followed up with male family members BUT uncomfortable following up with female relatives |
PB#16, Female | 33 | Yes | Yes | MAINTENANCE − Has told only sibling (brother), parents − Followed up with brother post-disclosure − Children too young to be screened |
PB#22, Female | 50 | Yes | Yes | MAINTENANCE − Told and followed-up with siblings, parents − Children too young to be screened |