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Table 5 Main reasons to discontinue or not to participate in PDAC screening – excerpt of questionnaire responses of IAR groups 2 and 3 (18 IAR of group 2 and 21 of group 3 stated their reasons)

From: German National Case Collection for familial pancreatic Cancer (FaPaCa) - acceptance and psychological aspects of a pancreatic cancer screening program

Reasonsa

N (%)

too much effort (time, travel expenses)

19/39 (48.7%)

fear of the diagnostic procedures and/or their results

13/39 (33.3%)

the annual follow-up is too frequent

10/39 (25.6%)

miscellaneous (received a bill (1x), wait time too long (1x), received no medical report (1x), death (2x))

9/39 (23.0%)

to be confronted with potential disease is too burdensome

7/39 (17.9%)

feel too old

6/39 (15.4%)

thought the program was terminated

5/39 (12.8%)

no interest, have no complaints

4/39 (10.2%)

  1. a- multiple answers were possible