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Table 5 Main reasons to discontinue or not to participate in PDAC screening – excerpt of questionnaire responses of IAR groups 2 and 3 (18 IAR of group 2 and 21 of group 3 stated their reasons)

From: German National Case Collection for familial pancreatic Cancer (FaPaCa) - acceptance and psychological aspects of a pancreatic cancer screening program

Reasonsa N (%)
too much effort (time, travel expenses) 19/39 (48.7%)
fear of the diagnostic procedures and/or their results 13/39 (33.3%)
the annual follow-up is too frequent 10/39 (25.6%)
miscellaneous (received a bill (1x), wait time too long (1x), received no medical report (1x), death (2x)) 9/39 (23.0%)
to be confronted with potential disease is too burdensome 7/39 (17.9%)
feel too old 6/39 (15.4%)
thought the program was terminated 5/39 (12.8%)
no interest, have no complaints 4/39 (10.2%)
  1. a- multiple answers were possible