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Table 3 Motivation, cancer worries and general distress of IAR according to questionnaires (excerpt)

From: German National Case Collection for familial pancreatic Cancer (FaPaCa) - acceptance and psychological aspects of a pancreatic cancer screening program

Question

Group 1 (n = 139)

yes/no/no c.

Group 2 (n = 29)

yes/no/no c.

Group 3 (n = 23)

yes/no/no c.

P-value

Is it important for you to be informed about your health

132 (95%)/7 (5%)/0

27 (93%)/ 0/2 (7%)

16 (70%)/3 (13%)/4 (17%)

1 + 3:< 0.0001

2 + 3:0.0532

1 + 2:0.004

Have you been informed comprehensively about the screening program?

134 (96%)/5 (4%)/0

27 (93%)/2 (7%)/ 0

22 (96%)/1(4%)/0

1 + 3: 1

2 + 3: 1

1 + 2: 0.3472

Is the thought of a possible PDAC a burden?

51 (37%)/80 (58%)/8 (5%)

3 (10%)/24 (83%)/2 (7%)

7 (30%)/16 (70%)/0

1 + 3:0.3642

2 + 3: 0.1018

1 + 2: 0.0213

Is it a burden to you to be confronted with death/disease of your relative(s)?

36 (26%)/ 102 (73%)/ 1 (1%)

4 (14%)/ 24 (83%)/1 (3%)

2 (9%)/ 21 (91%)

1 + 3: 0.1746

2 + 3: 0.5515

1 + 2: 0.1960

Are you afraid that the examination will show a suspicious result?

81 (58%)/51 (37%)/7 (5%)

3 (10%)/0/26 (90%)

4 (17%)/19 (83%)/ 0

< 0.0001

Is the annual screening too frequent?

7 (5%)/132 (95%)/ 0

7 (24%)/21 (73%)/ 1 (3%)

4 (17%)/19

(83%)/0

1 + 3: 0.052

2 + 3: 0.7338

1 + 2: 0.0027

Is the effort (travel costs, time, etc.) too high?

12 (9%)/121 (87%)/6 (4%)

8 (28%)/21 (72%)

11 (48%)/12 (52%)/0

1 + 3:< 0.0001

2 + 3:0.1571

1 + 2:0.0106

  1. no c. – no comment