Challenges in recruiting African-American women for a breast cancer genetics study

Table 2 Recruitment Results

		Total potential participants		Personal history of breast cancer		Family history of breast cancer^a
		Total	(%)	Total	(%)	Total	(%)
Valid contact information (n = 382)	Completed phone interview, returned consent form	174	18.0	65	22.0	109	16.3
	Completed phone interview, consent form not returned	54	5.6	20	6.8	34	5.1
	Did not complete phone interview	82	8.5	22	7.4	60	9.0
	Deceased^b	13	1.3	11	3.7	2	0.3
	Too confused to consent	2	0.2	2	0.7	0	0
	Declined	57	5.9	22	7.4	35	5.2
Unable to contact (n = 583)	No working contact information^c	149	15.4	43	14.5	106	15.8
	No response to phone message^d	162	16.8	35	11.8	127	19.0
	No response to email	78	8.1	14	4.7	64	9.6
	No response to phone message and email	194	20.1	62	20.9	132	19.7
	Total	965	100.0	296	100.0	669	100.0

^aFamily history is defined as having at least one first-degree relative with breast cancer
^bContacted a household member who informed us the Spit for the Cure participant was deceased
^cDefined as having no working voicemail and/or email address and not being able to leave a message with a household member
^dDefined as no response to voicemail message or message left with household member

ISSN: 1897-4287