Table 1 Thematic overview of the GPE course

• User perspective of a women carrying a BRCA mutation who is an “expert by experience” ^a

• General information about hereditary breast and ovarian cancers and the consequences of being a mutation carrier, including the family perspective

• Information about risk-reducing bilateral salpingo-oophorectomy and hormone replacement therapy

• Medical information about prophylactic bilateral mastectomy

• Discussions about body image and sexuality

• Information from patient networking groups

• Interaction between the course participants in small groups, which gives them an opportunity to learn from each other and reinforce a feeling of not being alone