Table 1 Protocols for returning genetic results
From: Disclosing genetic research results: experiences of the Colon Cancer Family Registry
Steps in the protocol | Ontario | Mayo | Australasia | Hawaii |
|---|---|---|---|---|
When do sites inform participants that genetic results may be available | At enrolment | At enrolment | At enrolment | When results available |
Who provides counseling (Genetic Counselor = GC) | GC shared by study and hospital | MD or GC | government-funded GC service | GC employed by study |
Number of sessions | 2 | 2 | 2 | 2 |
Mode of delivery of genetic results | In person | Telephone & mail | In person | In person |