Table 3 Most important reasons given for withdrawal from genetic counselling by the group of non-attendees (n = 46)

It is difficult to anticipate the consequences of genetic counselling

I am worried that I will not cope well with an unfavourable test result

I do not have sufficient information about cancer in my family

I want to postpone the genetic counselling for some years

I am worried that genetic counselling may cause stress in my immediate relationship/family (partner/children)

I am not interested in genetic counselling at the moment, it has low priority

The subject "cancer and hereditary" is too emotional/burdensome

One or more relatives do not want to participate in the genetic inquiries/counselling

I am worried about possible consequences for obtaining a mortgage or life insurance

I am worried that genetic counselling may cause stress within my larger family (brothers/sisters/cousins/parents, etc.)

I am worried about the possible consequences for my future plans (starting a relationship, choice of job, wish for children)

I am still waiting for an invitation from the family cancer clinic

I do not expect that genetic counselling will bring much news for me

I will wait for the results from other family members before I proceed with genetic counselling

Others advised me against the genetic counselling

I have had bad experiences with the family cancer clinic