Table 4 Proportions of patients answering correctly to each of the twelve disease knowledge questions from pre- to post-conference surveys
| Ā | Disease knowledge question | Patients correctly answering | % Improvement in proportions of patients answering correctly | |
|---|---|---|---|---|
Pre-conference: no. (%) | Post-conference: no. (%) | |||
1 | Lynch syndrome can be passed to a child through the mother or the father | 28 (100) | 28 (100) | 0.0 |
2 | Within a family, Lynch syndrome can affect each family member differently | 26 (93) | 28 (100) | 7.1 |
3 | Colorectal cancer is the only type of cancer that happens more often in people with Lynch syndrome | 24 (86) | 23 (82) | ā3.6 |
4 | If you look like your parent who has Lynch syndrome, you are more likely to have Lynch syndrome yourself | 21 (75) | 24 (86) | 10.7 |
5 | If a parent has Lynch syndrome, each child will have a 1 in 4 (or 25%) chance of having Lynch syndrome | 20 (71) | 23 (82) | 10.7 |
6 | On average, people with Lynch syndrome have a 60-80% chance of developing cancer of the colon or rectum | 23 (82) | 26 (93) | 10.7 |
7 | People with Lynch syndrome should have a scope exam of their colon or rectum every 1ā2Ā years | 26 (93) | 28 (100) | 7.1 |
8 | If a person with Lynch syndrome has his/her entire colon surgically removed, he/she no longer needs continued surveillance or evaluation of the remaining rectum or pouch | 25 (89) | 27 (96) | 7.1 |
9 | Women with Lynch syndrome have up to a 60% chance to develop uterine/endometrial cancer | 25 (89) | 26 (93) | 3.6 |
10 | Tests performed on the colon or uterine tumor tissues can be used to help diagnose Lynch syndrome | 19 (68) | 26 (93) | 25.0 |
11 | Currently, there is only one gene known to be associated with Lynch syndrome | 22 (79) | 25 (89) | 10.7 |
12 | There is a blood test available that can often identify the genetic cause of Lynch syndrome | 24 (86) | 24 (86) | 0.0 |