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Table 2 The University of Texas MD Anderson Cancer Center Lynch Syndrome Patient Education Conference patient survey

From: Patient-reported disease knowledge and educational needs in Lynch syndrome: findings of an interactive multidisciplinary patient conference

Question domains

Pre-conference survey

Post-conference survey

1. Respondent demographics

7 items (Multiple-choice)

0 item

ā— Age at LS diagnosis

ā— Demographics: age, gender, race/ethnicity

ā— Marital status, educational background, and health insurance status

ā— Method of diagnosis

2. Patient-reported experiences with LS

13 items (Multiple-choice)

0 item

ā— Personal history of cancers diagnoses

ā— Personal history of surgical interventions

ā— Surveillance for LS-related cancers

ā— Sources of knowledge regarding LS

3. Disease knowledge

12 items (Multiple-choice)

12 items (Multiple-choice)

ā— Hereditary basis of LS

ā— Hereditary basis of LS

ā— Transmission pattern

ā— Transmission pattern

ā— Risks of LS-related cancers

ā— Risks of LS-related cancers

ā— Surveillance strategies

ā— Surveillance strategies

ā— Prophylactic options

ā— Prophylactic options

4. Patient needs assessment and feedback

0 item

19 items (Rating, multiple-choice, free text)

ā— Learning needs addressed by the conference

ā— Patient-reported further learning needs

ā— Feedback regarding conference