Question domains | Pre-conference survey | Post-conference survey |
---|---|---|
1. Respondent demographics | 7 items (Multiple-choice) | 0 item |
ā Age at LS diagnosis | ||
ā Demographics: age, gender, race/ethnicity | ||
ā Marital status, educational background, and health insurance status | ||
ā Method of diagnosis | ||
2. Patient-reported experiences with LS | 13 items (Multiple-choice) | 0 item |
ā Personal history of cancers diagnoses | ||
ā Personal history of surgical interventions | ||
ā Surveillance for LS-related cancers | ||
ā Sources of knowledge regarding LS | ||
3. Disease knowledge | 12 items (Multiple-choice) | 12 items (Multiple-choice) |
ā Hereditary basis of LS | ā Hereditary basis of LS | |
ā Transmission pattern | ā Transmission pattern | |
ā Risks of LS-related cancers | ā Risks of LS-related cancers | |
ā Surveillance strategies | ā Surveillance strategies | |
ā Prophylactic options | ā Prophylactic options | |
4. Patient needs assessment and feedback | 0 item | 19 items (Rating, multiple-choice, free text) |
ā Learning needs addressed by the conference | ||
ā Patient-reported further learning needs | ||
ā Feedback regarding conference |