Table 1 Summary of the didactic content and organization of the University of Texas MD Anderson Cancer Center Lynch Syndrome Patient Education Conference
Time | Didactic content | Educational format | Speaker |
|---|---|---|---|
Morning | 1. Historical perspective of Lynch syndrome | Lecture | Gastroenterologist |
2. Updates in genetic testing | Lecture | Genetic counselor | |
3. Gastrointestinal surveillance strategies | Lecture | Colorectal surgeon | |
4. Gynecologic surveillance strategies, | Lecture | Gynecologic surgeon | |
5. Living with Lynch syndrome | Lecture & Volunteer patient panel | ||
a) Psychosocial aspects | Behavioral scientist | ||
b) The Genetic Information Non-Discrimination Act (GINA) | Genetic counselors | ||
c) Patient perspectives of the disease | Volunteer patients | ||
Lunch | Round-table topics included: “I am new to Lynch”; “I am a survivor”; Healthy lifestyle”; “Genetic testing and GINA” | Round-table breakout sessions with 1–2 speakers and 8–15 attendees | All speakers |
Afternoon | 6. Advances in Lynch syndrome: update on research. (Emerging chemoprevention trials) | Lecture | Colorectal surgeon & Invited expert |
Individualized question & answer | Free format | All speakers |