Table 2 Participant attitudes about PGT, HDGC, and quality of life (n = 21)
n (%) | |
|---|---|
Had you heard about PGD prior to participating in this survey? | |
Yes | 14 (66.7) |
No | 7 (33.3) |
Have you previously considered using PGD? | |
Yes | 3 (14.3) |
No | 16 (76.2) |
Missing | 2 (9.5) |
Level of interest in learning more about PGD | |
Not interested | 7 (33.3) |
Uncertain | 0 (0) |
Somewhat interested | 7 (33.3) |
Very interested | 7 (33.3) |
Do you believe it is an acceptable practice for healthcare providers to inform individuals who have CDH1 gene mutations about the availability of PGD? | |
Yes | 19 (90.5) |
No | 2 (9.5) |
In general, do you believe that PGD is acceptable for conditions that occur during childhood? | |
Yes | 16 (76.2) |
No | 4 (19.0) |
Missing | 1 (4.8) |
Do you believe that PGD is acceptable for families with CDH1 gene mutations? | |
Yes | 16 (76.2) |
No | 4 (19.0) |
Missing | 1 (4.8) |
How often do you worry about your chances of developing gastric and/or breast cancer (again)? | |
Not at all/ Rarely | 7 (33.3) |
Sometimes | 5 (23.8) |
Often | 7 (33.3) |
Almost all the time | 2 (9.5) |
Do you experience guilt related to HDGC syndrome affecting your family members? | |
Yes | 12 (57.1) |
No | 9 (42.9) |
On a scale of 1 (not severe) to 10 (most severe), how severely has HDGC syndrome affected your overall health and well-being? (M ± SD) | 6.0 ± 2.7; range: 2–10 |