Age 46, tested at 36, 4 children before testing, gene MLH1 | Very afraid of cancer and death, demanded for hysterectomy straight after testing, but was not operated until at age of 45. |
Age 37, tested at 27, 1 child before testing and 3 children after testing, gene MLH1 | No influence on family planning. Genetic finding has caused other difficulties in life. Encourages her children to have genetic testing. |
Age 32, tested at 22, 1 child after testing, gene MLH1 | Considers the uterus and ovaries a risk. Plans to have surgery after menopause. |
Age 42, tested at 26, 1 child before testing and 2 children after testing, gene MLH6 | Genetic finding has caused uncertainty and anxiety. Grateful for surveillance. |
Age 52, tested at 35, 2 children before testing and 1 after testing, gene MLH1 | First reaction was fear and disgust towards upcoming surveillance procedures. Later grateful for information and her children’s possibility for genetic testing. |
Age 58, tested at 42, 1 child before testing, gene MLH1 | Grateful and positive thoughts. Considers herself safe and privileged for surveillance. |
Age 42, tested at 27, 2 children after testing, gene MLH1 | Grateful for supportive professionals. Tells that surveillance appointments were nor provided automatically at regional hospital, had to insist them. |
Age 34, tested at 27, 1 child before testing and 1 after testing, gene MLH1 | Had depression for 6 months after genetic finding. Other reasons influenced as well. Considers results reported to her in an unfriendly and negative manner. Felt that prophylactic removal of gynecological organs deteriorates self-esteem. |
Age 41, tested at 33, 1 child before testing and 3 children after testing, gene MLH1 | Grateful for testing and surveillance. Worried for her children. |
Age 39, tested at 21, 2 children after testing, gene MLH1 | Genetic finding had negative influence on feminine self-image. |
Age 30, tested at 23, 2 children after testing, gene MSH2 | Was missing peer support, then got it from her own sister after her testing. Grateful for surveillance. Worried for her children. |
Age 36, tested at 27, 1 child after testing, gene MLH1 | Feels safe and does not have worries. Grateful for surveillance. |