Table 5 Quotes from carriers – CRC risk management
From: How does genetic risk information for Lynch syndrome translate to risk management behaviours?
Quote no. | Participant | Quote |
|---|---|---|
12. | Amy (32, tested 8 years ago) | I think it was a bit conflicting, you know some say every second year up until the age of thirty I think it was, but I’ve been having annual for as long as I can remember. So yeah that seems to be a little bit grey that area – some say annually, some say every second year. |
13. | Linda (47, tested 10 years ago) | I mean I hate having them, but you know you just go oh well, it’s locked in. I know what I need to do for that day. |
14. | Eve (52, tested 1.5 years ago) | Never having had a polyp and then this last time there was a polyp I go, okay, that’s why I do it…Cause I need to have the polyp to create the cancer…Reassuring, that’s right. That’s why I’m doing it, to get it out |
15. | Matt (37, tested 10 years ago) | I don’t enjoy doing it. I’ve always asked is there any other way of doing it, can I try anything else and they say, nuh, this is it…I’ve missed it a couple of times, I just don’t respond…I just feel uncomfortable doing it. |
16. | Fred (55, tested 4.5 years ago) | They said to do it every two years, and yet I’ve taken five years. As I said to you, I’ll probably do it more now because I’m getting older and because the doctor I’m with now, I’m more comfortable with him. |
17. | Matt (37, tested 10 years ago) | My dad keeps on drumming in my head to keep on getting tested, but I don’t know. It’s not going to solve anything…The wife, she’s cracked it a few times at me because sometimes I haven’t gone. I said if it’s gonna get me, it’s gonna get me…[How would you describe your chance of getting bowel cancer now?] High. Ninety percent. They (colonoscopies) can’t prevent it. It’s just getting it at an early stage, it’s not going to stop it by coming. |
18. | Fred (55, tested 4.5 years ago) | No risk at all, because I just don’t think we know enough about it to be able to say that you’re at higher risk. Someone could have a test and say you haven’t got the gene, but then they develop another form of cancer from something else…If I had a colonoscopy tomorrow, didn’t have one for two years but then in between that two years had cancer, why didn’t it get picked up? What brings it out at what stage? |